Friday, December 15, 2023

Merry Christmas 2023


Happy Day +4680 and

Merry Christmas to You All!

    We usually find a way to print these updates and mail them with our Christmas cards, but 2023 has been an interesting year.

Gemma Larisa McKellar was born January 5, 2023, about 3:30 PST. She debuted at 7 lbs 5 oz of wiggling cuteness. Michael and Stefanie are proud parents. We are proud grandparents! Gemma is rapidly approaching her first birthday, and will experience the wonder and confusion of having a birthday within approximately a week of Christmas and New Year's. Because my birthday is in January, I have a fair notion of what it's like when your folks have to find you a birthday present during the time that they're still busted from Christmas.

    Our first child, Heather, is starting a new job with the police department. She will be working in the records department. Their oldest, Eli started his freshman year at Iowa State University and Rose is a senior in high school. Both are accomplished musicians and top students. Chris continues to improve.

    Andrew and Kris are still in Iowa. Daren is working and Raine is in his senior year of high school. Amanda is upstairs at home and makes her living streaming online. She is always available to explain to me how and why I am wrong. That used to be my function for my Dad. It’s a unique experience to be on the other end of that equation. Also, it's good to have someone younger in the house.

    Marian remains in good health, despite a stroke (Nov. 2021) and a bout with colon cancer in 2019.

    April 17th was a day full of surprises. After wandering around, doing housework (for men that means vacuuming), I called up the stairs for Marian to drive me to the hospital. I was having a classic heart attack! I walked into the hospital and announced that I was having a heart attack, and shortly thereafter, I was (not) enjoying my second ambulance ride to Marquette. When I came home on April 25th, I had seven shiny, new stents and some more medications to take. I did 25 weeks of cardiac rehab, and I now carry Nitroglycerin pills.

    Thanks to the kind help of a local friend I made the trip to Wausau, WI to see a pulmonologist for an evaluation and pulmonary function study. That news wasn’t cheerful. My FEV1 (lung capacity) has dropped from 25% to 19%. Now, I have to work on proving him wrong as well. It’s good to have goals.

Merry Christmas Everyone.

Wednesday, January 30, 2019

Mick McKellar Update -- Day +2900

Frosty Milestone

I was born when I was very young.
          Counting days was not one of my habits until I was confronted by my own mortality. I started by counting days until my next round of chemotherapy. I continued when I could no longer withstand chemo’s onslaught and I was given eight months to survive until a suitable stem-cell donor could be found. Next, I counted days of preparation until my immune system was fully non-functional and the transplant could take place.
          Finally came day zero: February 21, 2011 -- my rebirthday. Once again, I began counting -- 100 days full of milestones: bottoming out, engraftment, appearance of my brand new immune system, and my introduction to acute Graft versus Host Disease. It was a busy time and I kept my mind busy by counting days and writing about my present journey and my past journeys.
          After 100 days (and a few extra days for testing, paperwork, and administrative stuff) we went home to continue counting days and waiting for chronic Graft versus Host Disease to come knocking. My old friend (and nemesis), cGvHD, has come a-knocking at my door far too often to ever be welcome and he nearly always takes something with him. We wrestle, he and I, every day.
          And so, I still count days and I still feel grateful to wake in the morning and to slip peacefully away into the world of sleep each night; where I am unencumbered by the steely chains of cGvHD. I thank God for each day, and try to remember that every precious moment with family and friends is mine to share if I wish. Recently, I was reminded that, although those with enough hate or enough wealth might cut short my remaining days, they cannot use them -- live them -- not one second.
          The content of my days, my thoughts, my memories, my joys and regrets...those precious moments are mine. Although some wish I would shut up, I can’t help but share them freely -- be they bright and cozy and warm or dark and painful and cold -- because once given, they live on beyond my count of days.
         Today is 2,900 days since my blood and marrow stem cell transplant.


Friday, August 17, 2018

Mick McKellar Update -- Day +2734

How Do You Say No?

I have never been certain where they get our name, address, and phone number, but charities and non-profits from hospitals to sheriffs, and from anti-disease to religious organizations send mail and call us regularly. Our discretionary funds are limited and spoken-for. My mail rule is simple -- the glitzier the package, the less likely they are to get a positive response. Why give money to spend on extravagant advertising? We try to screen calls and politely decline.   Mostly, the organizations comply and mostly they call during the day -- but not all.

Once again, tonight,  I was backed into a verbal corner by an unrelenting pitch person from a charity. This group has been calling for weeks and have tried at all hours, from early morning to mid-evening. I can see their name on the phone (and on the TV, if I am watching something at the time) and I've been screening those calls. Tonight, the call came in without the usual name and we were waiting for a return call from a relative, so it was answered and passed to me because the caller asked for me by name.

She seemed like a nice person, and she said something about my being hard to reach. I laughed and said that I am sometimes hard to reach on purpose. That was the first hint that this was not going to go well.

At this point, she launched into her pre-programmed spiel about the great need for research to help those afflicted with a certain condition. I could be a great help by contributing, and could they send me a reply card for a simple donation of $100.00? A payment schedule could be arranged. And...

At this point, I cleared my throat and politely suggested we stop the script at this point, because we have already made our choices for the charities and organizations we can help support, given we are on an income which is simultaneously fixed and shrinking...

As I took a breath (I have to breathe often because of my lung problem), she jumped back in to stress how important their work is and how flexible they can be on payments...

Gently interrupting, I spoke a little more forcefully, with my best wheezy voice, and said that we would not be taking on any more contributions at this time, but will keep them in mind for the future. I was going to say good night as it was well after 9:00 PM.

Well then! Could they send me a card to agree to a very small contribution of just $20.00? After all, this terrible condition could strike anyone in my family or friends and the cost of their medical needs and research...

Less gently, I interrupted again, and said that the cost of my medical needs is also increasing and my income is going down as my insurance costs are going up -- in fact I had just received a notification from my car insurance company of yet another rate increase. So no, I would not be adding an additional expenditure to our list of charities. I took a breath...

She came back with a reminder of how prevalent the problem is and certainly, I would be willing to sign a card for a minimum payment of $10.00 -- and maybe I should tell three people close to me that I love them for they are likely to get this problem...

Believe it or not, I growled.

There was silence on the line, whilst I counted to ten and tamed the beast that prednisone always creates -- it takes months for the pudgy face and belly and the junkyard dog to go away. After my count, I quietly said I was sorry, but no, there would be no contribution. I said "Thank you for cal..." and I hung up in the middle of my own sentence.

 They never believe that you would hang up on yourself.


Monday, July 2, 2018

Mick McKellar Update -- Day +2688

Fireflies in the Darkness

I need to explain the source of my hyper-politicism and more than usually curmudgeonly language. It's called Prednisone. I am tapering off the steroid, but it's not yet gone from my system and my nerves are still buzzing and snapping -- fireflies in the darkness.

My deepest desire has always been to live as large as life. I harbor no thoughts of being larger than life, or a retiring soul, complacent in a tiny corner of my appointed box. I want to fit my life -- just the right size. Life, unfortunately continues to change the size of my box and even attempts to push it off the table. And, of course, there is always someone who wants to steal my box -- usually while I'm  busy scoping out someone else's...

This is where my old pal, Prednisone, wants to play
. The steroid is  a useful, even necessary part of treatment for conditions like mine, which involve a lot of inflammation. In the hospital, bags of this stuff hang near my bed, bathing my innards with the solution. In my case, the side-effects are well known. My nerves tense and conglomerate until they are one very large nerve, and everyone gets on it. That nerve is fast and furious. Response time is zero -- too fast for me to control or even slow.

I have learned that it is not the "roid rage" that I so often hear about. My description would be roid reaction, instantaneous and not well controlled. It's the verbal outlash that you immediately regret and wish you could take back. It's the sudden, emotional reaction to something I read or hear, but it contains all the fire of a lightning strike in one uncontrollable blast. Like superelastic rubber, the harder you strike it, the harder it strikes back.

Well folks, I've been living in that box for the last couple of weeks. This morning, I took a peek over the side and saw the tracks of my big boots where I've been trampling about again. Clint Eastwood tracks were everywhere. He once said: "I tried being reasonable, I didn't like it." To those on whose toes I left Eastwood tracks: Sorry.

Perhaps Lord Byron said it best: "Man, being reasonable, must get drunk; the best of life is but intoxication." My take on that quote is that life itself is intoxicating -- get drunk on life.

Secrets and Fears

I must not forget the secret side-effect of such steroids: Fear. Death-cold, goosebump inducing, "someone just walked on your grave" grade fear often accompanies such treatments. I've experienced night terrors that I swear loosened the connecting tissues to my bones and apparitions that made my soul shudder. However, once you've faced death for real and found Faith as your armor, you breathe easier for you never feel alone.

One must understand fear: It walks through walls, be they emotional walls, rock walls, or border walls -- walls do not stop fear. Fear lives only in your mind, you cannot buy it off and you cannot legislate it away -- and yet, you can share it with those ready to accept it. Like fire, it feeds and propagates. You cannot control fear or save it or box it up for later, but you can generate it as terror.

How do I deal with fear?

Prayer is essential. Trust me, it helps. And I add in one kinda strange exercise I learned while reading a science fiction classic: Dune by Frank Herbert. In Dune, a group called the Bene Gesserit recite a Litany Against Fear. I find it's imagery poignant and exactly what I need. Two versions appear in Dune, with minor differences. This is the  Gom-Jabbar version:

Litany Against Fear

I must not fear.
Fear is the mind-killer.
Fear is the little-death that brings total obliteration.
I will face my fear.
I will permit it to pass over me and through me.
And when it has gone past I will turn the inner eye to see its path.
Where the fear has gone there will be nothing.
Only I will remain.

Thanks for reading along. Stay safe and free of fear.


Thursday, June 28, 2018

Mick McKellar Update -- Day +2684

Want to be an Ambulance

I was watching a cute video this afternoon, a dog listened to an ambulance passing his place, and then he began to howl and to imitate the ambulance sound -- not very well, but after all -- he IS a dog! The video was titled: When I Grow Up, I Want to be an Ambulance.  After staring at his fuzzy, earnest face doing his best to be an ambulance, my heart went out to the fellow and I suddenly felt a strange sort of empathy for his plight. He wants to help, and he does his best with his limited tool set.

Recently, I had several opportunities to feel the need to be an ambulance myself. First, was the night of the storm. I could tell that terrible things were happening outside, after all, it just doesn't rain like that around here very often. We were lucky that our house is up here in Florida Location, well above any flood plains and far above any ravines opening on the hills down to Lake Linden below us. The nearby wetland area absorbed most of the water falling on our hill and only about two inches of it ended up in our old basement -- just enough to shut off the water heater and ruin a few stored boards and boxes. Nothing we could not afford to lose out of laziness -- they were supposed to be on blocks or pallets.

I wanted to be an ambulance -- to run out the door with my lights flashing and my siren roaring so that I could be a first-responder and help my neighbors down the hill. But, no. Instead, I went into the hospital myself with an organizing pneumonia and after an apparent TIA (Transient Ischemic Attack) -- a mini-stroke that left me coughing and babbling the word "brain" over and over for the balance of the day. Two and a half days, I remained in Intensive Care as my system slowly inched its way toward normalcy. My SPO2 was down around 80% (dangerously low) and my CO2 level was a bit too high -- probably causing the TIA.

I'm home again and just finished a course of very strong antibiotics to kill the pneumonia. Home oxygen is once again part of my life. I am still chaffing to be an ambulance and help folks with their recovery, but my efforts all exist within the confines of my oxygen tube and nasal cannula. If I want to roam a bit, I have to suit up with my fancy oxygen tank and sporty short cannula, and take my tank for a walk. Some ambulance, eh?

Maybe I should just howl a bit. I'm certain Dante would join me, and we can be ambulances together...


Friday, May 25, 2018

Mick McKellar Update -- Day +2650

Bronze Age Redux

     It was Wednesday, May 26, 2010 at about 9:00 AM, when I received a call at my workstation. I was working on a project for the Keweenaw National Historical Park under one of those federal programs that train seniors for jobs that don’t really exist. A few hours earlier, I’d stopped by Aspirus Keweenaw Hospital for a serious blood test, to determine if I had type II diabetes. The symptoms were all there...had been since January...and the fatigue was overwhelming.
     I was worried. When blood began to appear in my eyes and distorted my vision, it seemed prudent to get a diagnosis and deal with it. So, it was with trepidation I accepted the call.
     The nurse practitioner told me to get my butt over to the hospital immediately. They had an ambulance waiting for me...I had leukemia. Thus began my now eight-year journey.
     Tomorrow is the Bronze Anniversary of my diagnosis and marks eight years surviving Philadelphia chromosome positive, chronic myeloid leukemia. I have entered my Bronze Age.

Betwixt and Between

     As I enter my bronze age, I leave my stoned age behind. I am taking no regular pain killers now, and fewer drugs that leave me dizzy or wobbly. I begin the long wait for my iron age, when once again I will have the strength to lift and wield a cast iron frying pan. However, despite the Sumerians, Gilgamesh, and the Amorite Code of Hammurabi, I find it most ironic to have my bronze age in the Copper Country.
    All really bad jokes aside, I am pleased to note in passing that tomorrow I will be an eight-year cancer survivor. I shall celebrate with a cup of Earl Grey and a toasted English muffin with homemade blueberry jam.
    The above commentary came about as I was pondering the Code of Hammurabi, known for its harsh punishments, wherein literally an-eye-for-an-eye edicts appear, that are literally carved in stone -- a four-ton stele of diorite. However, the code incorporates, for one of the very first times, the idea that a person is innocent until proven guilty. It’s a precept often abandoned by our own court of social media.

One Final Thought

    Although the age will be bronze, alas, I will remain pale as fresh milk. Like the vampires of old, I cannot long tolerate the touch of old Sol and must remain in the shadows, or bring my own shadows with me.
    I am thankful for all who sent thoughts and prayers. Your thoughts reassured me and your prayers convinced God to let me go on complaining and kvetching. Thank you.


Tuesday, May 15, 2018

Mick McKellar Update -- Day +2640

Tangle Trap

   I had a dream last night. Marian and I had gone to Marquette for my appointment at the hospital with a pulmonologist. He would be reading my pulmonary function studies as the tests are done to track the progression of my bronchiolitis obliterans, i.e., GvHD of the lungs.
    As we were leaving the waiting room, we had a chat with a young couple from Houghton. She was pregnant and having some difficulty breathing, but it wasn't serious. What was serious, was the condition of their car, apparently the victim of a runaway end-loader that nearly totaled their Cooper Mini. They badly needed a ride to Houghton, so we offered a lift home. Marian would wait with them, and I would toddle off to get our car and bring it around.
    My steps were not particularly buoyant, because my visit with Dr. Saari had not gone as planned. There were indications that my left lung was failing and recommendations were sent to my primary doctor that I should have a full panel of X-rays and maybe a CT Scan. I was focused on this news as I rode the elevator to the ground floor of the hospital. I stepped off the elevator, directly into a construction area -- what appeared to be a warehouse or steel-framed space, filled with end-loaders, welders, workmen in hard hats and overalls, and girders being lifted by what appeared to be a steam crane. My ears must have popped, because the sound was muffled and distant, as though I had cotton stuffed in my ears.
    I saw men in double-breasted suits and fedoras talking by a wooden stairway to a suspended office space, and headed in that direction. I turned around to place the elevator door in my memory, but it was gone, replaced by a large hole, partially filled with a huge form being filled with concrete...a footing?
    When I looked back, the men in fedoras were gone, but I could see shadows of people moving in the office. So, I toddled over and slowly climbed the stairs. I knocked on the door with a frosted glass window. When no one answered, I opened the door and walked in. Men in fedoras were standing around a desk, occupied by a young man in a plain wool suit, typing on an old Olivetti upright typewriter.
    I closed the door and turned around again...and was standing in a 19th century bedroom or hotel room, complete with pitcher and basin on a stand, floral wallpaper (which looked different every time I noticed it) and a four-poster bed with nightstand and oil lamp. Fog or mist blanked windows framed in heavy brocade curtains. Flickering light was provided by wall sconces -- gaslights by the look of them.
    Already occupying the room were two women and a baby. The women wore period traveling clothes and seemed in a rush to pack and leave. One portmanteau was open and a few items were on the bed. The baby was in a dresser drawer filled with towels and never moved that I could see. One woman was older -- perhaps 50 years old or so, with mostly gray hair. The other woman was ancient -- shriveled and stooped, white hair billowing about her wizened face. They ran back and forth to the baby and to the bed, talking a stream of nonsense in what I surmised was some form of German. At least it sound like German. I could not be certain, because the sound of their voices seemed to be coming from a great distance. Point in fact, they seemed a tad transparent and took no notice of me.
    I spoke to them and received not even a flicker of recognition. I tried to touch the younger woman, but my fingers slid off as though a shield interfered. I could not interact with them, so I decided to leave.
    When I turned around and reached for the door, I was surprised to be staring at a large dresser, a highboy with many drawers. A quick search showed a door in the opposite corner of the room, so I quickly walked over, grabbed the knob and pulled.
    On the other side of the door was another door which opened the other way. I opened that door and found a third door. The tenth door was locked. It seemed to be made of black oak and had a huge brass door lock. No amount of pounding, kicking, and shouldering had any effect whatsoever. It was immovable.
    I needed to reassess my situation, so I closed the ninth door and reached for the eighth. In doing so, I nearly stepped off the stairway to the office, almost falling to the floor ten feet below. I was out of the room!
    Looking about me, I discovered the construction site gone and I stood in a garage, facing the doors to the elevator. In the polished reflection of the elevator doors, I could just make out my reflection. Indistinct and wavy, I haunted the surface. But, my eyes were clearly reflected and my irises were black as midnight and gave me the shivers. I started screaming.
    Police were called, and I was transported home, refusing to go back into the hospital. Six months had passed since I toddled off to get the car. A whole lot of searching had been done and no trace was found until I appeared in front of the elevator doors. My story was met with blank stares and smothered sniggers. I felt wretched and misunderstood.
Anger burned me from the inside and I shrieked...
    I woke up from my dream, shaken and cold. Upon standing next to my bed, I looked into the bedroom mirror and my eyes looked weird. My soft brown eyes were hard black. I quickly looked away and back again. My old eyes stared back at me.
    Sometimes, dreams can feel too real.